Congressional Briefing on Comprehensive Sickle Cell Disease Care for Maternal and Child Health Populations

Join the Association of Maternal & Child Health Programs (AMCHP), in cooperation with Senator Cory Booker (D-NJ), for an informative briefing on the current state of care for maternal and child health populations with sickle cell disease. Despite sickle cell disease being the most common inherited blood disorder in the United States, there is a noticeable gap in efforts for research, treatment, and awareness in comparison to other chronic illnesses. The in-person educational congressional briefing will be an opportunity for collaboration and engagement with key stakeholders, including members of Congress, and to learn valuable insights and information on sickle cell disease to inform federal, state, and local policy efforts.

When: March 5th, 2024 from 12 PM-1 PM ET

Location (in-person): Senate Russell Office Building, Room SR-385

Panelists:

• Dr. Deron C. Burton, MD, JD, MPH (CAPT, USPHS), Director, Division of Blood Disorders and Public Health Genomics within CDC’s National Center on Birth Defects and Developmental Disabilities
• Dr. Jeffrey Brosco, MD, PhD, Director of the Division of Services for Children with Special Health Needs within HRSA’s Maternal and Child Health Bureau
• [Family Story] Dr. Tobi Adeyeye Amosun, MD, FAAP, Deputy Commissioner for Population Health of the Tennessee Department of Health, AMCHP Board member, and parent of a son with sickle cell disease
• [Teen Advocate] Ayana Lee Johnson, SCDAA’s 2021-2023 National Teen Ambassador and sickle cell disease warrior

Register to attend here.