Building Resilience from Lived Experience – LaShay Canady

by Chery Manon Espinal | Nov 28, 2022 | Blog, Blogs & Podcasts, CYSHCN, Emergency Preparedness

In this video, a public health professional shares details of her emergency preparedness plan to assure the safety of two family members who require full care. With the “red suitcase” packed and ready, she explains her strategy to support her family’s evacuation in...

Building Resilience from Lived Experience – Micklina Kenyi

by Chery Manon Espinal | Nov 28, 2022 | Blog, Blogs & Podcasts, CYSHCN, Emergency Preparedness

In this video, an immigrant from South Sudan shares the story of her family’s evacuation from a wildfire that wiped out entire neighborhoods in her suburb west of Denver. She shares her sense of panic as her historical trauma was triggered as she struggled to...

The Forced Sterilization of Disabled People in the United States: An Interview with Ma’ayan Anafi, Senior Counsel for Health Equity and Justice at the National Women’s Law Center

by Chery Manon Espinal | Mar 17, 2022 | Adolescent Health, CYSHCN, Pulse Newsletters

Interviewed by Lauren Blachowiak, Government Affairs Manager, Association of Maternal & Child Health Programs (AMCHP). This interview took place on February 22, 2022.   This interview discusses the results of a newly released report by the National Women’s...

Taylor’s Story: How Her Family Worked with Medical Specialists to Help Her Navigate Complications of Puberty

by Chery Manon Espinal | Mar 17, 2022 | CYSHCN, Pulse Newsletters

By Erin Parks, Northeast Family Support Partner, Oklahoma Family Network.   My name is Erin, and I have a beautiful 20-year-old daughter named Taylor who has Down syndrome. My husband and I prepared Taylor for puberty and the concept of getting her period for...

Congenital Heart Disease Doesn’t “Shut Down” During a Pandemic. Neither Do We.

by Chery Manon Espinal | Feb 2, 2022 | CYSHCN, Emergency Preparedness, Maternal & Infant Health, Pulse Newsletters

By Becca Kalivas, RN, MS, Education Director, Conquering CHD   There is no doubt 2020 presented unknown and scary challenges for most of the world. The uncertainty continued throughout 2021 as well. For patients and families trying to navigate congenital heart...

AMCHP CARES Act Awardees Use Telehealth to Improve Care During the Pandemic and Beyond – Highlights from Three States

by Chery Manon Espinal | Feb 2, 2022 | CYSHCN, Pulse Newsletters, Telehealth

By Sabra Anckner and Brittany Frew, Association of Maternal & Child Health Programs (AMCHP)    In spring 2020, the Association of Maternal & Child Health Programs (AMCHP) received a CARES Act grant from the Health Resources and Services Administration...